Showing posts with label cancer. Show all posts
Showing posts with label cancer. Show all posts

Health & Fitness Helps Cancer Patients Improve Their Health

Today I would like to share with you a guest post by blogger David Haas. David is a cancer patient advocate who spends time writing and researching for the betterment of others.  You all know how I stress exercise during and post treatment.  David shares with us some helpful information on the subject.  Just remember, during treatment, you need to listen to your body and your mind.  Some days you may feel like exercising and some not; this is okay; really….my wish is for you to feel good about it and yourself.  Be well. 

Health & Fitness Helps Cancer Patients Improve Their Health, by David Haas

For a person who just received a cancer diagnosis or is experiencing physical pain from cancer treatments, physical activity may seem like the least beneficial thing they can do for themselves. Cancer patients may feel tired after their treatment, and they may not feel up to the challenge. However, becoming or remaining physically active is actually the best thing that a person who is battling cancer can do, and it has benefits that extend far beyond weight loss or increased agility. There is a proven connection between the body and the mind. Consequently, keeping both of them healthy is the best way to achieve a balanced life beyond a cancer diagnosis.

According to an article by the National Cancer Institute, fatigue and physical functioning are factors that directly influence the quality of life for cancer patients.  This has the same effect whether someone is undergoing chemotherapy for breast cancer or going through painful and overwhelming mesothelioma treatment. If a cancer patient is experiencing extreme tiredness from treatments or from mental stress, they may not want to engage in exercise. However, fatigue may soon set in as a result of inactivity. Then, reduced physical functioning is almost sure to follow. Because this will lessen the quality of life for the cancer patient, keeping a schedule of regular physical activity is of the utmost importance.

Along with keeping the body and the mind healthy, engaging in fitness activities while undergoing treatment can also help some patients keep their weight down and their muscles well toned. Weight gain can occur due to some of the medicine that a cancer patient is taking, or as a result of neglecting to carefully monitor their diets. Working with a doctor or fitness expert to create a fitness routine that can effectively address these issues will help to make sure that the patient’s body remains in the best possible condition throughout the process of diagnosis and treatment.

The National Cancer Institute article mentioned above states that there are often more gains in health that happen with cancer patients who exercise than with those who do nothing at all. This should help cancer patients understand the importance of making sure that fitness is a priority. It is understandable that someone who has just finished a chemotherapy treatment or a round of medicine may not always feel up to walking on the treadmill or biking through the park. In these cases, it is imperative that the patient remembers that balance is the key to achieving a healthy body and healthy mind. When balance is the ultimate goal, fitness can become an enjoyable part of any cancer patient’s life.

Elyn Jacobs
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Elyn Jacobs is President of Elyn Jacobs Consulting, Inc. and a breast cancer survivor.  She empowers women diagnosed with cancer to navigate the process of treatment and care, and she educates about how to prevent recurrence and new cancers.  She is passionate about helping others get past their cancer and into a cancer-free life.

Why the Race is going in the Wrong Direction

Much progress has been made in Breast Cancer awareness. However, being aware of cancer neither prevents nor cures cancer. If I told you that I am aware my kitchen window is broken, would you cheer? Would my telling you this fix my window? Would it prevent another ball from coming in the window? No. I think the race for the cure is over. I ask you, who would benefit from finding the cure? Women, not drug companies right? But it is becoming painfully obvious that money is not being spent on a cure, but rather on drugs and talking about cancer. We now need to spend money and energy on the prevention of cancer as well as exploring new and less toxic treatments for cancer. What’s new and worthy of research and trials? Read on.

Scientists are aware of a virus that initiates cancer in mice. Could this virus be responsible for cancer in humans? Maybe; scientists estimate that approximately 40% of all human breast cancers may be related to a virus. This virus, called the human mammary tumor virus, is nearly identical to a virus found in mice. (mouse-mammary tumor virus) that causes breast cancer in 95% of the animals it infects. If it can be proven that this virus causes human breast cancer, a vaccine could be developed to protect against it, and new therapies could be developed that could treat those women whose breast cancers are caused by it. It’s time we stop racing and start researching. To learn more, please see this documentary film, It’s Time to Answer the Question, nominated Best Film of the Year 2010 by Rethink Breast Cancer: http://www.youtube.com/watch?v=K4SCKJ1l27o.

There are at least two promising vaccines in the works. One, which is being conducted by Dr Brian J. Czerniecki, MD, PhD at the University of Pennsylvania, is already being tested in women with breast cancer—and is showing remarkable but under-reported results. He is currently the principle investigator for a vaccine trial for patients with DCIS. What is unique about Dr. Czerniecki’s trial is that it examines the efficacy and safety of vaccines in a much earlier setting, even before invasive cancer is present. The results from this trial are particularly exciting as they open the door for the use of vaccines as cancer prevention tools as opposed to treatment of late stage disease. To read more about Dr. Czerniecki’s vaccine, please visit:
http://www.penniesinaction.org/messagefromuschi4.html
http://www.penniesinaction.org/vaccine%20explanation.html
http://www.penniesinaction.org/about4.html

Another exciting study, spearheaded by Professor Vincent Tuohy of the Cleveland Clinic, has the potential to produce the first preventive breast cancer vaccine that also has therapeutic potential for women with Stage IV breast cancer. In May 2010, Professor announced that he had successfully developed the first preventive breast cancer vaccine, capable of preventing breast cancer in 100% of mice and also capable of slowing the growth of tumors that had already formed. Tuohy, a recipient of prior R01 grants from the NIH (the most prestigious funding available), is ready to begin Phase I trials (safety testing) in women. If Tuohy’s vaccine is safe and effective, it could eliminate 95% of breast cancer in this country, and possibly become an important therapeutic treatment for the 3 million breast cancer survivors now living in the USA. However, for this vaccine to become a reality, Professor Tuohy must receive the necessary funding. For more information on Tuohy’s paper, please see this link: http://www.nature.com/nm/journal/v16/n7/abs/nm.2161.html
To view a short video of Tuohy’s work, please see this link: http://www.youtube.com/watch?v=QffAJmyALb0

Exciting news? Yes, however, here is the big question. I talk a lot about cancer, cancer prevention and treatments. I go to as many conferences as I can. Why is it that there is so little talk of viruses and vaccines for breast cancer? I have Dr Kathleen Ruddy and Janet Hanson to thank for the information included it this blog. I am grateful to have learned of the new possibilities. However, for these and other cancer vaccines to begin to save lives, we need to stop talking and start funding the right studies. Now the challenge is not to keep aimlessly racing…it’s time to put some money in the hands of these skilled researchers and to let them test their theories.

Dr Ruddy sent me a blog she wrote last night, I love her idea of changing National Breast Cancer Awareness Month to National Breast Cancer Action Month. It’s about time we focused on action instead of pretty pink ribbons. To read her blog, please view: http://breastcancerbydrruddy.com/?p=2894

Elyn Jacobs
elyn@elynjacobs.com
elynjacobs.blogspot.com

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Elyn Jacobs is President of Elyn Jacobs Consulting, Inc. and a breast cancer survivor. She empowers women diagnosed with cancer to navigate the process of treatment and care, and she educates about how to prevent recurrence and new cancers. She is passionate about helping others get past their cancer and into a cancer-free life.

Hypotheses for Natural Cancer Remission

Today I am excited to share a guest blog by Kelly Turner. Kelly is a researcher, lecturer, and consultant in the field of integrative oncology. She assists cancer patients who are interested in integrating complementary medicine approaches with their Western oncology treatment. Her interest in complementary medicine began when she received her B.A. from Harvard University, and it later became the sole focus of her Ph.D. at the University of California, Berkeley.

Kelly’s dissertation research included a year-long trip around the world, for which she and her husband, Aaron Teich, L.Ac., traveled to ten different countries to interview 50 holistic healers and 20 “spontaneous” remission cancer survivors about their healing practices and techniques. She is currently working on a book for cancer patients that summarizes her research findings. I hope you will find her research helpful.

Hypotheses for Natural Cancer Remission – Part 1
By Kelly A. Turner, Ph.D.

My name is Kelly Turner, PhD, and I’m a cancer consultant and researcher who studies people who heal from cancer without Western medicine, or after Western medicine has failed to remit their cancer. While personally I believe in combining the best of Western (allopathic) and Complementary medicine, as a researcher I study anomalous cases.

For my dissertation research at UC Berkeley, I traveled around the world for a year asking 50 non-allopathic healers from 12 different countries about how they treat cancer. Afterward, I asked 20 cancer survivors who had healed without Western medicine why they thought they healed. After scouring the 70, hour-long interview transcripts for common themes, what emerged were 3 underlying beliefs about cancer, and more than 75 cancer “treatments.”

In this guest blog, I will be discussing the three underlying beliefs about cancer. I will be describing the Top 6 cancer “treatments” used by my interviewees in another guest blog soon at http://www.tamiboehmer.com.
You may also read my full dissertation here: http://www.shuniyahealing.com/offer/research.html

(Note: This study was designed to collect hypotheses. Therefore, please remember that the following “findings” are opinions only).

Belief #1: Change the Conditions under which Cancer Thrives
The majority of my interviewees believed that cancer thrives under certain, sub-optimal conditions in the body. Therefore, to remove cancer, they recommended changing the underlying conditions in the body, at which point the cancer cells would theoretically die off naturally. This is quite different from the Western (allopathic) medicine view that sees cancer cells as “invaders” in an otherwise healthy body. An integrative oncologist from Japan describes his theory as follows:

HEALER (from Japan): Cancer substance is not made by cancer cells, but by human beings. And the cancer substance to change is not cancer cells, but human beings. Bad circulation and low [body] temperature – cancer cells never created [those] conditions. Human beings themselves created [those] bad circumstances.

KELLY: So it’s the bad circumstances that human beings create in their body that allow the cancer cells to grow?

HEALER (from Japan): Yes. So, my understanding is cancer cell is not malignant cell, but sacrificed/delinquent cell…adapted to the wrong circumstances…In our body, cancer cells never arise up in a heart or small intestine, because these heart and small intestine are warm and high [in] blood and high content of oxygen. Small intestine and heart is good circumstance, so [they have a] small percentage [of cancer] – [it is] very unusual for cancer [to appear in those organs].

Belief #2: Illness = Blockage/Slowness, Health = Movement
The majority of my 70 interviewees also believed that any illness – including cancer – represents a blockage or slowness in the system, while health is characterized by unhindered movement and flow. The theory is that when everything is flowing smoothly – your breath, blood, food, waste, emotions, and even your energy – then your body will be healthy and able to remove any bacteria, virus, etc. that enters your body. One woman who healed herself of metastatic pancreatic cancer said it this way:

“I think the etheric body – the energy body – organizes the physical body based on thoughts or emotions that are either flowing or blocked. So as long as emotions and thoughts are positive and flowing…then the physical body is holding a state of greater balance. As soon as the thoughts become low frequency thoughts, or our emotions become low frequency emotions, then the energy tends to jam up or get blocked in the auric field. And when it blocks up enough, it first creates discomfort…When nothing is done to release those emotions or thoughts, or to change them, eventually it moves into the etheric field and sometimes even into the physical body, and that’s what causes what I call ‘dis-ease.’ And again, it’s still just energy that’s stuck.”

Belief #3: A Body-Mind-Spirit Interaction Exists, and “Energy” Permeates All Three
The third and final underlying belief that the majority of my interviewees discussed was the idea that a body-mind-spirit interaction exists, and that energy (also called “chi” or “prana”) permeates all three of these levels. A chi-gong healer from New Zealand, who is also a colon cancer survivor, said it this way:

“They say a person is made up of your physical body and your ‘shen’ – which [in Traditional Chinese Medicine] is your consciousness or spirit – and then ‘chi’ is the thing that connects the ‘shen’ and your physical body. So those three will work together and are one, really, but the key thing to remember is that the ‘shen’ leads the ‘chi,’ so your consciousness, or where the mind is going, is where your chi is going, and that begets your physical body. So if your ‘shen’ is really busy and very emotional, you know going up and down, that really depletes your chi, and that leads to disease or breakdown.”

From the Author:
I am always looking for more cancer survivors to interview for my research. If you know of any that fit my research criteria, please invite them to email me at kellyturner@ShuniyaHealing.com. To learn more about the benefits of complementary therapies, please visit: http://www.ShuniyaHealing.com.

Elyn Jacobs
elyn@elynjacobs.com
elynjacobs.blogspot.com
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Elyn Jacobs is President of Elyn Jacobs Consulting, Inc. and a breast cancer survivor. She empowers women diagnosed with cancer to navigate the process of treatment and care, and she educates about how to prevent recurrence and new cancers. She is passionate about helping others get past their cancer and into a cancer-free life.

Tamoxifen, Friend or Foe?

I follow many, many blogs and cancer-related online chat forums. One I saw today really stung. A woman asked if anyone taking Tamoxifen had ever experienced debilitating bilateral posterior leg pain and the inability to walk or sit without intense pain. She mentioned that she had done all the tests, MRIs, x-rays, etc. with no resulting explanation for her pain. She added that her doctor took her off the Tam and her symptoms subsided significantly. Another woman mentioned that issue plus a host of others, including a persistent and unexplained cough.

Well, I have been on Tam for four years, and three years ago I started experiencing intense pain while sitting, then found it very painful to walk. I saw one doc, told me pelvic misalignment was the issue, and after a few of his treatments, I got worse, I could only walk if I dragged one leg. So much for him. Saw another Doc, said it was two torn hamstring muscles, the left side being severe. I explained that this was unlikely as surely I would have known when this happened (something like a sudden sharp pain would be memorable). However, I was desperate to walk so I agreed to try his “treatment”, a painful and useless platelet procedure. No change. Saw another Doc, he viewed the same MRI results and said that it wasn’t a hamstring issue, it was a disc issue. He offered another painful procedure. This time I was not gullible and refused. He then suggested physical therapy. No change. Next I consulted an integrative chiropractor; he suggested misalignment and stress being the culprit. I will never know if he was right, but after a year of his treatments and the massage therapy he suggested, I am fine. Was it the Tam? Who knows, but I am starting to think so.

And then there’s the cough…..

In December 2010, I started coughing. Still coughing a few months later, I went to my Internist and since I felt otherwise fine, he suspected lung cancer. Thankfully the tests were negative, and he suggested it could be asthma and allergies. Okay, so that makes sense. I started to believe maybe he was right, and that perhaps my mother’s chronic cough could have been that too, undiagnosed. Now, I am not so sure…..was it, is it the Tam? I will have to take this up with my oncologists, but so far, NONE of my doctors suggested this could be the culprit. It’s well known that bone and joint pain can be common, but not the type of pain at issue here. I’d like to think that they are simply not aware of the connection as I happen to have much respect for my doctors…..at the moment.

Perhaps it is all coincidence. Perhaps not. However, one thing I do know is that before an oncologist so quickly orders Tam, AI’s or Chemo for that matter, more needs to be learned and side effects/symptoms taken seriously. I would hate to think that I spent thousands and thousands of dollars and endured years in pain dealing with problems that could have been eliminated by stopping the Tam. Are my symptoms a small price to pay for avoiding recurrence? Maybe, but again….quality of life doesn’t seem to concern most doctors….maybe it’s time they started teaching this in med school. One last note….did I mention that inflammation increases the risk for recurrence….humm….wonder how much of it I’m hosting in my chest, legs, and derriere. Prevention should not be part of the problem.

To read more the possible side effects of Tamoxifen, please view:
http://www.drugs.com/sfx/tamoxifen-side-effects.html

Elyn Jacobs
elyn@elynjacobs.com
elynjacobs.blogspot.com


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Elyn Jacobs is President of Elyn Jacobs Consulting, Inc. and a breast cancer survivor. She empowers women diagnosed with cancer to navigate the process of treatment and care, and she educates about how to prevent recurrence and new cancers. She is passionate about helping others get past their cancer and into a cancer-free life.

Stand Clear of the Closing Doors

Today I am excited to share a guest post by Johnny Cathcart, a 2x childhood brain cancer survivor, award winning filmmaker and author. At 23 years old, he published his book “Hotpants….a memoir,” detailing his journey through cancer and beyond. He currently resides in New York City where he works as a freelance writer, videographer and editor, but his dream is to be a full-time author and filmmaker. I hope you get your dream Johnny, you’ve certainly earned it!

Stand Clear of the Closing Doors Please

“The year just flew by didn’t it?” “Has it been that long already?” “I climb the mountain, turn around, and I see my reflection in the snow covered hills…” So we’ve all heard some rendition of that statement, in all different contexts of life. Not just from the Dixie Chicks, but work, family… old high school friends, in our minds. Think back to elementary school. Time didn’t fly back then! I remember getting up, cartoons and cereal adventures in the morning, the looong day at school, all of the classes, recess, friends, walk home time, then riding bikes, and the hours of intense fun. Then there was family dinner, prayers, and a cartoon or two before bedtime. The year was nice and very slow. Remember? The swing set drama? Then there were all the high school stresses while working our way through the social mazes. Even college years seemed slower and more full than now. Though, since I popped out the long chute into the rock hard workforce world… the sun sets the minute it rises, morning coffee and evening cabernet become one, and the snow that falls melts to summer before it kisses my rapidly aging skin cells. What happened to that moment that is forever stuck in iPhoto now?

Well, ten years ago I had walked out of St. Jude Children’s Hospital in Memphis for the last time as a full time cancer patient. I was 15. Every so often I had been visiting for checkups; less and less as the years progressed, and 6/25/2011 will be my last check up ever. Recently my mom reminded me over the phone that after the 25th, if everything is still fine, then I would be completely discharged from the hospital forever. I sniffled up these thick, spongy tears at that moment. My cancer battle had been a constant struggle for 3 straight years before I was 15, completely turning my life and my family’s life in a different direction. “It’s been 10 years already?”

I think of how it seems like last month when I was blasted with my last radiation treatment. It seems like last week I hugged my college friends for the last time. It really does seem like yesterday when I moved to New York and heard that famous phrase “Stand clear of the closing doors please” for the very first time on the train.

Time is crazy like that isn’t it? Memories collect and bunch together, it all just goes in an instant and all of the sudden you are where you are… and 10 years have gone by. Poof! - iPhoto… It’s not gone though. They’re not just “memories” to hang on a mental shelf. They are building blocks. Every little thing, that one recess, that one detention, that one kiss, that first fight you had with your dorm mate, that first job, etc… all formed who you are now. Every bit of what happened to me, every scraped knee and every moment has made every bit of my character up to this second that I sit here typing at my Bronx apartment. The years totally fly by, but think about it… Reflect on each little thing that happened that made up between 9:00 – 9:15 this morning. When you add that with the conversation at lunchtime, and the unwinding news program on the recliner in the evening, you can think how each of those events, melded together, have become your person and character as it is right now. In other words, though they seem to have flown by, each event of every moment of every day, week, and month is profound and meaningful. “Yeah, I think back on these happenings now, the memories stacked up, and though they seem to have flown by, when I reflect on how each event has built up to me today, it all seems more filled, a nice full life time.” Has it been 10 years already?


Johnny was the videographer for a You Tube interview I did for www.TalkAboutHealth.com , featuring Ann Fonfa, Founder of the Annie Appleseed Project. To view the most recent clip, please view: http://www.youtube.com/watch?v=iPrBlhdI_Pk&feature=channel_video_title

To read more of Johnny’s work, please visit: http://vimeo.com/johnnycathcart

To Read about Johnny's book, please visit: johnnyhp.com

Elyn Jacobs
elyn@elynjacobs.com
http://elynjacobs.blogspot.com

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Elyn Jacobs is President of Elyn Jacobs Consulting, Inc. and a breast cancer survivor. She empowers women diagnosed with cancer to navigate the process of treatment and care, and she educates about how to prevent recurrence and new cancers. She is passionate about helping others get past their cancer and into a cancer-free life.

Remission

The other day I was asked by a representative from a cancer organization how long have I been in remission. I didn’t know what to say; I am four years out and no one had ever asked me that. I did not answer the question but rather said that I had cancer in 2007. Remission is a bad word. One needs to believe that cancer has been beaten. Remission implies that it is only a matter of time before the cancer returns. By definition, remission is the period of time during which symptoms of a disease are reduced (partial) or undetectable (complete). In the case of breast cancer, remission means that tests and imaging do not show evidence of the cancer, and that a doctor cannot see signs of the cancer during a clinical exam. It does not mean the same thing as cure. Doctors almost never use the term cure; rather, they usually talk about remission. Mine never spoke of either, just said I would be fine and that I should not worry about recurrence. It’s not that he was guaranteeing me my cancer would not return, he simply stated that I need not worry. He is right; can my cancer come back? Sure, but I choose to believe that it will not, and worrying about it is not going to prevent recurrence, but could likely encourage one. Microscopic collections of cancer cells often go undetected in all humans, not just in those of us who have had cancer. Therefore, while we are all at risk for cancer, you don’t see others saying, “Ah, but my cancer cells are in remission”, do Ya? No, and often these cells will be eliminated before they can cause trouble.

I am not living in denial; I am not ignorant of the nature of cancer. I know that for many, remission is a wonderful word. However, it’s time to change the attitude. The mind-body connection to cancer is strong, but so is the beast itself. Cancer remission is like roach control. As long as you put out the traps, no roaches….but that does not mean you have solved the roach problem. Eventually the roaches will win. We need to find a cure so that we can put the word remission in the circular file. We as humans can only do so much. We can eat better, reduce our stress, and live better. However, we need to find a cure for those who are in the battle of their lives; we need to stop racing and start curing. Clear-mission is what we need, not remission.

Elyn Jacobs
elyn@elynjacobs.com

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Elyn Jacobs is President of Elyn Jacobs Consulting, Inc. and a breast cancer survivor. She empowers women diagnosed with cancer to navigate the process of treatment and care, and she educates about how to prevent recurrence and new cancers. She is passionate about helping others get past their cancer and into a cancer-free life.

From Cancer Patient to “Respant” (Responsible Participant) by Bernie Siegel, MD

This blog is posted with permission of cancer pioneer, author of Love, Medicine and Miracles (and many other books and CDs), and Emerald Heart Advisor Dr. Bernie Siegel. This somewhat shortened version is a one borrowed from The Emerald Heart Cancer Foundation. To read the entire article and others, please visit Bernie at www.berniesiegelmd.com. To view more posts on the EHCF's blog, please visit www.emeraldheart.org.

Enjoy, this is a powerful post.

Elyn Jacobs, Director, The Emerald Heart Cancer Foundation

From Cancer Patient to “Respant” (Responsible Participant)
by Bernie Siegel, MD
Unfortunately doctors and health professionals, in general, do not study success. We are far more likely to consider an unexpected recovery to be due to the treatment or a spontaneous remission. However, I have learned from my experience with patients and by asking them, “Why didn’t you die when you were supposed to?” that they always had a story to tell.
By speaking up and becoming a character or problem patient you become identified as a person and not by your room number or disease and, therefore, are far less likely to have a fatal or non-fatal medical error made while being cared for. The word patient derives its meaning from submissive sufferer. That is not a good thing to be when hospitalized or receiving medical treatment of any kind. You need to be a respant, or responsible participant if you want to heal and survive.

We now know from studies how one’s emotions and personality affect survival rates. I was criticized years ago for speaking about many things; no one had researched because no one believed they made sense, which are now scientific. Simple things like laughter affecting the survival of cancer patients and loneliness affecting the genes which control immune function are now proven to be true by studies. The fact that women live longer than men and married men live longer than single men with the same cancers, is not about female hormones or sleeping with them, but about relationships and meaning in your life. Survival behavior and an immune competent personality are not an accident or luck.

…When people have a sense of meaning in their life, express anger and emotions appropriately in defense of themselves, ask for help from family and friends, participate in their health care decisions, say no to what they choose not to do, find time to do what they enjoy and to play, use their feelings to help them to heal their lives and do not live a role but an authentic life they will always do better than expected. I would add that a spiritual faith and not seeing the disease as God punishing them also plays a role, as well as, their desire and intention to survive. Disease is a loss of health, not punishment, and your health is to be looked for as you would seek to find your lost car keys.
Difficult patients do not die when they are supposed to. Statistics do not determine their outcome or results. Those with inspiration who transform their lives and rebirth themselves give their bodies live messages and the body then does the best it can for them. Our bodies love us but if we do not love our life and bodies it sees illness and death as a way to be free of our afflictions… When you let an MD, or Medical Deity, determine whether you live or die you are giving away your power. I have seen people, whose hope was taken away by doctors,….go home, climb into bed and die. I have also seen others get damn angry at their doctors and go on to survive for many years or be cured of their disease.

You have to start with a belief in yourself and faith in all the things you incorporate into your life and choose as therapy. I know people who have left their troubles to God and been cured of cancer. A patient of mine, who was a landscaper, after surgery refused treatment for his cancer because it was springtime and he wanted to go home and make the world beautiful before he died. He lived to be ninety-four and became my teacher…

….When patients become empowered they do not just respond from their intellect but use their intuition too. When you are submissive and let others prescribe for you, you are in trouble…
Last but not least one must also choose the therapy you believe in and you can reprogram your mind and body through guided imagery if there are any conflicts. I know of a case where, after repairing the radiation therapy machine, the radioactive material was not replaced. So for one month people were not being treated and yet the radiation therapist did not know this until their routine inspection of the machine was done a month later. He was telling me how terrible he felt about not treating anyone for a month when I said, “You’d have to be an idiot to not know you weren’t treating anyone. So obviously people had side effects and their tumors shrinking because they thought they were being treated.” His response, “Oh my God you’re right.”
…Patients need to be respants and keep their power and feel free to change doctors and criticize them in a constructive way. The best doctors are criticized by patients, nurses and family. Why? Because they do not make excuses and learn from their mistakes. So love yourself, take responsibility for and participate in your life and state of health. This is not about avoiding dying but about living and its beneficial side effects.


Elyn Jacobs
elyn@elynjacobs.com

Worried About the Side Effects of the Pill? You Should Be.

The use of oral contraceptives invites a host of side effects, but perhaps breast cancer was not one of the highlighted risks mentioned by your doctor. Scientists have connected the use of birth control pills to a higher risk for breast cancer for many years. An association between estrogen and increased risk of breast cancer has led to a continuing debate about the role birth control pills play in developing breast cancer. Research suggests that some cancers depend on naturally occurring sex hormones for their development and growth, so logic would say that more hormones are not a good idea. The NCI openly acknowledges the hormonal connection between birth control pills and HRT and cancer. However, the real question is why are they not talking about the fact that both oral contraceptives and hormone replacement therapy are known to be carcinogenic, and are known to cause cancer in humans?

On Sunday, I had the pleasure of meeting with Kathleen Ruddy, breast cancer surgeon and Founder of the Breast Health & Healing Foundation. Kathleen shared with me her knowledge regarding the connection between BCP’s and cancer.

The following is a summary of our discussion on this topic:

In 2005, after reviewing the world’s literature on oral contraceptives and hormone replacement therapy, the IARC, a branch of the WHO, declared both to be Group I Carcinogens, known to cause cancer in humans. Specifically, birth control pills cause breast cancer, especially when they are used prior to a woman’s first full-term pregnancy (as they most often are) – in which case, they increase the risk of premenopausal breast cancer by more than 40%. Every day, an estimated 100 million women use the pill, excreting (via urine) into our shared environment 30% that is still biologically active. This is equivalent to just dumping 30 millions pills into the water supply every day. Therefore, the users of the pills are at increased risk from carcinogens, but so are the rest of us.

To read a summary of the IARC report, with reference to the full 200+ page document, please go to this link: http://www.americanthinker.com/2010/02/the_pill_and_breast_cancer.html

Read more:
http://www.iarc.fr/en/media-centre/pr/2005/pr167.html

Elyn Jacobs
elyn@elynjacobs.com
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The Breast Health and Healing Foundation is the only non-profit organization whose specific mission is to discover the causes of breast cancer.
Elyn Jacobs is President of Elyn Jacobs Consulting, Inc. and a breast cancer survivor. She helps women diagnosed with cancer to navigate the process of treatment and care, and she educates about how to prevent recurrence and new cancers. She is passionate about helping others get past their cancer and into a cancer-free life.

Too Busy to Schedule Annual Exams? Think Again

I know, annual exams are time consuming, and for someone who is in or has gone through treatment for cancer, routine exams may feel like just one additional burden. However, anyone who has faced cancer or any life-changing condition knows that prevention and early detection are critical. We also know that some issues don’t always present themselves with symptoms and many are often difficult to diagnose. We know that there is cross-over detection when you see more than one doctor (i.e. your ob-gyn may discover something your internist may have missed, dermatologist might see something one of your other doctors missed…you get the idea). Likely you feel compelled to put off these exams. I like all of my doctors; I just prefer to spend my time elsewhere. However, I urge you to make and keep those appointments.

I was scheduled to see my Ophthalmologist in March, but gave my appointment to my son as he wanted to get new glasses and I wanted his eyes checked first. I rescheduled for a month later. After my routine exam, the doctor tells me, “Okay, the good news is that your vision hasn’t changed. However, we need to talk”. I never like to hear these words from any doctor. He proceeds to tell me that last year I was at medium risk for Acute Glaucoma and that now my risk has elevated to high. He tells me that AG is somewhat common in people who are very farsighted (has to do with angles, I will spare you all the details here). He proceeds to tell me that I could live for 100 years and never suffer an attack. The problem is there is no way to know which of the patients with this problem will suffer an attack. However, if I did this would be a medical emergency, and if I did not get proper medical treatment immediately I would suffer complete and irreversible loss of vision. The room goes quiet. I had no symptoms as there are few. The warning sign for an attack is you wake up during the night in excruciating pain and need to rush to the ER. He explains the preventive procedure, that this is a laser procedure and is mostly risk-free. I ask him when I need to do this surgery. He says there is no rush, just don’t leave town and don’t use any form of antihistamine as this could trigger an attack. I tell him I suffer terribly with allergies and go away most weekends. I schedule the appointment for the following week. I will need to come back for the second eye; they don’t do both at the same time, just in case. Humm….I think, I thought this was risk-free. A gentle reminder that there is a language barrier between patients and doctors.

I am happy to report that two procedures later, I have my vision. I am not a believer in “what if’s.” They have no purpose in life except to add excess worry and fear into one’s life. However, I am once again reminded that life and its gifts are not to be taken lightly. Today, I made an appointment with my oncologist, just to say hello—


Elyn Jacobs
elyn@elynjacobs.com
http://elynjacobs@blogspot.com

A Window from Heart to Heart


I’m excited to share a special guest post by Sue Memhard, founder of the Emerald Heart Cancer Foundation. The Emerald Heart Cancer Foundation supports women in holistic/integrative cancer care. This post is a reprint of her post on Miracle Survivors*. Thank you, Sue and Tami for sharing this wonderful post.

 By all medical standards, my being here is a miracle. Since early 2009 I’ve been on a crash course in miracles beginning on my 60th birthday, when I was diagnosed with breast cancer again.
I was a two-time survivor (16 and 14 years prior), and had each time undergone surgery, chemotherapy, and complementary treatments of supplements, diet change, and spiritual work. My oncologist each time directed me to stop the chemo, as it made me seriously ill, and I declined recommended radiation. Nevertheless, I survived for 14 years.
However, the chemo made me increasingly susceptible to lingering respiratory infections, chronic low energy, mysterious immune and neurological dysfunctions, generalized suppressed health…. and later, severe chemical sensitivity. This time, I knew that surgery and chemo were not options for me: it was unlikely that I would survive the surgical anesthesia.
While I was considering what to do, the cancer quickly became very advanced. In early June, husband Jim and I abruptly flew across the country for me to begin intensive treatments with a holistic & powerful energy healer. Gradually, I began to feel stronger. The treatments, in addition to dietary changes, daily Kundalini yoga, an herbal program, spiritual work and supportive acupuncture; began to have an effect.  Miracles began to happen.
We moved into a hotel for four months while Jim went back to Massachusetts to collect our loyal old dog, pack up our house, and wrap up our long-time New England lives. While he was gone, a wonderful hotel staff shopped for food and drove me to my daily appointments
We were spending down our modest life savings, and my husband was out of work. While costing a fraction of a conventional, insurance-covered treatment regime, my daily out-of-pocket treatments and supplemental interventions were crushingly expensive. I spent all free time researching cancer organizations for financial help.
Repeatedly I heard: there was no help available unless an individual was doing chemotherapy or radiation.
My treatments were saving my life, and healing my soul. They cost far less than chemotherapy or radiation. I deeply wanted to live. But no help was available.
 A year later, much stronger and still healing, I decided to start The Emerald Heart Cancer Foundation to help other women (there are thousands) who seek to enhance or extend their lives with the help of holistic, or CAM (complementary and alternative medicine) cancer interventions. Our vision: that all women can afford to pursue healing with dignity, hope and grace. 
It’s my passion, and my purpose. Please visit us at www.emeraldheart.org. We’re a year old now, and we welcome your support. 
May you be blessed with healing, happiness and light. Sue
"There's a window that opens from heart to heart"  --Rumi

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Sue was inspired to start Emerald Heart Cancer Foundation by her own challenges paying for holistic treatment for her cancer. Sue is an internationally collected painter, and she is selling her art to pay for her treatments. To view Sue’s art, please visit:

*To view more on Tami’s blog, please visit http://www.tamiboehmer.com/


Cancer? Find the Right Team

Cancer treatment is not one-size-fits-all. You wouldn’t go to a community hospital for cancer surgery, nor would you go to a cancer center for hemorrhoid removal. Further, all cancer centers are not alike; each has a different philosophy, a different culture, a different specialty. It’s all about choosing the right facility and the right team for your cancer.

Sandy, a patient with stage III colon cancer, came to me a few months ago, wanted me to go with her to see her surgeon. The surgeon was very nice and she felt comfortable with him. However, it was very obvious that this doctor did not specialize in colon cancer. I begged her to let me take her to a specialist. After meeting the specialist, she immediately realized she had almost made a huge mistake, possibly the biggest mistake of her life.

Maggie, diagnosed with stage 0 breast cancer, went to a prominent cancer facility for a lumpectomy. When she woke up, she had a wound from nipple to underarm. Such drastic surgery was completely unnecessary for her type of cancer. A small, discreet incision would have allowed for complete removal of the tumor and for clear margins. She came to me distraught. Why did this happen? She chose the wrong team. Her team focused on only one thing, removing the cancer; they overlooked the fact that she was a young woman with a long life to live. I wish she had come to me before she made that fateful decision. Some might say, but why do you care what you look like, you have cancer! Because there is life after cancer, that’s why, and it is most often completely unnecessary to come out of it looking like a train wreck.

When I was diagnosed, I went to two prominent cancer specialists. One was lovely, but I felt I would be getting “my mother’s mastectomy”. I wouldn’t buy an out-dated cell phone and I certainly wouldn’t accept outdated cancer surgery. The second asked me if I wear evening gowns or bathing suits. Why? It was possible to perform my bilateral mastectomy from underneath the breast instead of from the side or through the middle. I researched this doctor, found out he had performed more mastectomies than any other doctor in NYS. If you are lucky enough to see my breasts, you would challenge the fact that I had surgery! I wanted a doctor who uses cutting edge thinking, someone who continues to learn new ways to perform surgery. If your doctor is not open to such discussions or dismisses your questions as frivolous, find a new team. If you are diagnosed with cancer, you need to find the specialist who is best for your type of cancer and for your needs. You owe it to yourself to get it right the first time.

I am a cancer coach; I help women diagnosed with cancer to navigate the process of treatment and care, and educate about how to prevent recurrence and new cancers. I am passionate about helping others get past their cancer and into a cancer-free life.

Elyn Jacobs
elyn@elynjacobs.com

Wake up FDA, Splenda is Not Safe for Consumption

The makers of Splenda, McNeil Nutritionals, would like us to believe that it is the perfect sugar substitute; as sweet as sugar, but contains no calories, does not create a surge in insulin and offers no long-term side effects or long-term health damage. If only this were true. Splenda, (sucralose), has more in common with DDT than with food. The bonds holding the carbon and chlorine atoms together are more characteristic of a chlorocarbon than a salt — and most pesticides are chlorocarbons. Splenda is the trade name for sucralose; a synthetic compound stumbled upon in 1976 by scientists in Britain seeking a new pesticide formulation. Sounds delicious, right? It is true that the Splenda molecule is comprised of sucrose (sugar) — except that three of the hydroxyl groups in the molecule have been replaced by three chlorine atoms. Supporters of Splenda claim that just because something contains chlorine doesn’t mean that it’s toxic. But chlorine is toxic. Chlorine is linked to cancer of the esophagus, rectum, breast and larynx, of Hodgkin’s disease and to atherosclerosis and resulting heart attacks.

Why would the FDA allow a product with proven carcinogens to flood our food supply? Our current regulatory system doesn’t do a good enough job ensuring our long-term safety. The FDA claims Splenda is safe because “it is made from sugar.” Sucralose starts off with a sugar molecule, but that's where the similarity ends. Splenda is not a natural sugar; it is a chemically derived, chlorinated artificial sweetener.

A study published in 2008 found that Splenda reduces the amount of good bacteria in your intestines by 50 percent, and increases the pH level in your intestines. It's very disturbing that Splenda can destroy healthy intestinal bacteria as these bacteria are absolutely vital for supporting your general health. 80% of your immune system is located inside your digestive tract, which means that your digestive tract is the most important factor in your health. It has been estimated that 90% of all chronic symptoms and chronic conditions are caused in part by poor or declining gut health. What’s even more disturbing is that these studies were done in 2008 and yet Splenda is still considered safe.

However, it gets worse. Splenda also affects a glycoprotein in your body that can have crucial health effects, particularly if you are taking certain medications like chemotherapy or are in treatment for AIDS. Moreover, studies done using animals have found the following issues:

• Decreased red blood cells—sign of anemia
• Increased male infertility by interfering with sperm production and vitality
• Brain lesions at high doses
• Enlarged and calcified kidneys
• Spontaneous abortions in nearly half the rabbit population given sucralose, compared to zero aborted pregnancies in the control group
• A 23 percent death rate in rabbits, compared to a 6 percent death rate in the control group

FDA, are you sleeping? It’s been almost 30 years since aspartame hit the market. The FDA needs to ban Splenda and other artificial sweeteners. They have the power to prevent damage to human health sooner than with NutraSweet, which has damaged the health and the lives of millions of innocent consumers since it was placed in the public food supply in 1982, but when will they catch on? In the meantime, knowledge is power. As an educated consumer, you have the awareness to choose what you and your family will ingest. Artificial sweeteners may affect your health, so why take the chance? Organic agave syrup or Stevia are much better alternatives.

Elyn Jacobs
elyn@elynjacobs.com

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Elyn Jacobs is President of Elyn Jacobs Consulting, Inc. and a breast cancer survivor. She helps women diagnosed with cancer to navigate the process of treatment and care, and she educates about how to prevent recurrence and new cancers. She is passionate about helping others get past their cancer and into a cancer-free life.

Read more:
http://articles.mercola.com/sites/articles/archive/2011/04/26/major-media-finally-exposes-splendas-lies.aspx
http://articles.mercola.com/sites/articles/archive/2011/04/26/major-media-finally-exposes-splendas-lies.aspx
http://www.splendaexposed.com/
http://www.ncbi.nlm.nih.gov/sites/entrez?orig_db=PubMed&db=pubmed&cmd=Search&TransSchema=title&term=Journal%20of%20toxicology%20and%20environmental%20health.%20Part%20A%5BJour%5D%20AND%202008%5Bpdat%5D%20AND%20splenda
www.truthaboutsplenda.com
http://www.wynman.com/chlorine.html
http://www.womentowomen.com/digestionandgihealth/leakygutsyndrome-intestinalpermeability.aspx?id=1&campaignno=yeast&adgroup=ag2leakygut&keywords=leaky+gut+syndrome&gclid=CIHuire9x6gCFQMRNAod2SsNpQ

Is Aspartame Safe for Diabetics?


I recently saw a Tweet stating that aspartame was safe for Diabetics; talk about misleading information.  Aspartame is not safe for anyone and should never have been approved as safe for human consumption.  Aspartame is one of the most common artificial sweeteners used today, and yet it has the potential to damage your nervous system—your brain and nerves—leading to a variety of symptoms from migraine headaches to unexplained seizures, dizziness, depression, and vision problems. Aspartame has been found to create MS like symptoms in patients which can result in false diagnosis. It is linked to cancer, obesity, and diabetes. 

Aspartame was found to cause various types of primary brain tumors in rats when studies were done in the 1970’s.  Even though these studies showed a very clear connection between aspartame and brain cancer, the FDA approved its use as a table-top sweetener in July 1981.  Two years later, in July 1983, aspartame was approved for widespread use in diet beverages.  One year after that, the number of human brain tumors in the US suddenly increased by 10%! Aspartame is comprised of 10% methanol, 40% aspartic acid, and 50% phenylalanine.  Methanol has been proven to cause damage to the optic nerve which can cause blindness, and aspartic acid has been proven to create holes in the brains of mice.  Phenylalanine breaks down into DKP, a tumor-causing agent.  The creation of DKP in the body is one way aspartame can trigger cancer.  Another way is partly related to what happens to aspartame when it exceeds 86 degrees Fahrenheit, as it often does when, for instance, diet drinks are being shipped in hot trucks or stored in hot warehouses.  At higher than 86 degrees, the methanol in aspartame converts to formaldehyde and then to formic acid, both of which are potent carcinogens. And according to Dr. Joseph Mercola, aspartame is, by far, the most dangerous substance on the market that is added to foods.

Brain cancer is not the only type of cancer aspartame has been linked to. Leukemia, lymphoma, breast, testicular and endometrial cancer have also been associated with aspartame.  Parents may want to be extra diligent about checking the ingredients list of anything sweet (including non-food items) they give their children as aspartame is commonly used to sweeten medicines, antibiotics, vitamins and toothpaste.  Given the high rate of brain cancers and leukemias in children these days, it would seem to me that aspartame should be avoided (or banned).  I cringe when I read about the ignorant school officials who started the war on sugary sodas in schools only to replace them with diet sodas.  Please, have they no common sense? Soda of any type does not belong in school, and as bad as sugar is, artificial sweeteners are worse. However, before someone suggests they go back to sugar soda, keep in mind that one teaspoon of sugar can devastate the immune system for up to six hours, leaving you vulnerable to attack from viruses, bacteria, cancer cells and parasites.

As to aspartame being safe for diabetics?  Some would have you believe that anything without calories is safe for diabetics.  However, according to Dr. David Brownstein, “Aspartame is particularly toxic for diabetics because it disrupts the body’s normal response to glucose, which is to cause the pancreas to release insulin. The main symptom of diabetes is high blood sugar due to the body's inadequate production or utilization of insulin. Therefore, aspartame is doing exactly the opposite of what diabetics need.” Dr. Brownstein goes on to say, “Unfortunately, even the American Diabetic Association has fallen for this propaganda, and has accepted the idea that aspartame is a suitable sugar substitute for diabetics.”

Aspartame is not safe for diabetics or anyone else. All sources of aspartame sweetener need to be avoided; try pure stevia as a replacement. 

Elyn Jacobs

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Elyn Jacobs is President of Elyn Jacobs Consulting, Inc. and a breast cancer survivor.  She helps women diagnosed with cancer to navigate the process of treatment and care, and she educates about how to prevent recurrence and new cancers.  She is passionate about helping others get past their cancer and into a cancer-free life.

Read more:

The Dark Side of Peanuts and Dairy

Peanut butter is a staple in many children’s diets.  Peanuts (which, by the way are a legume, not a nut) are hign in protein, so why not eat them?  Peanuts, and expecially peanut butter are often contaminated by a fungus-produced toxin known as Aflatoxin (AF).  Aflatoxins often occur in crops in the field prior to harvest, but after harvest contamination can occur if crop drying is delayed and crops are stored in moist conditions.  Aflatoxins are found occasionally in milk, cheese, corn, peanuts, cottonseed, nuts, almonds, figs, spices as well as in feeds for animals (the reason AF is found in dairy and meat products).  However, the commodities with the highest risk of AF contamination are corn, peanuts and cottonseed.  Peanut butter is often contaminated with levels of AF as much as 300 times the amount judged to be acceptable in U.S. food, while whole peanuts were much less contaminated.  This disparity between peanut butter and whole peanuts originates at the peanut factory.  The best peanuts, which fill “cocktail” jars, are hand selected from a moving conveyor belt, leaving the worst, moldiest nuts to be delivered to the end of the belt to make peanut butter.  The visual here makes me never want to even look at peanut butter again.  So besides the unappealing idea of eating moldy peanuts, what’s the real issue?  AF’s have shown to cause liver cancer in rats, and are thought by many to be the most potent
chemical carcinogen ever discovered.  So where’s the FDA?  The FDA allows AF’s at low levels in nuts, seeds and legumes because they are considered “unavoidable contaminants.”  The FDA believes occasionally eating small amounts of aflatoxin poses little risk over a lifetime, and that it is not practical to attempt to remove it from food products.   The problem here is the word “occasional.” 

Who is most susceptible to AF contamination and its cancer-producing effects?  Children are major consumers of peanut butter.  (I will add that I practically survived on peanut butter for much of my early adulthood, and certainly suspect that was part of my demise.) Children are also major consumers of dairy products, and a well-known study called The China Study produced compelling evidence that casein, the protein in cow’s milk, helps promote and nurture tumor development.  The study produced significant evidence that a high-animal protein diet combined with even a small amount of aflatoxin resulted in very high rates of liver cancer in adults as well as children.  They also found that in those people who consumed considerable AF’s and very little animal protein, cancer rates were very low.  Adjusting the amount of dietary casein we consume has the power to turn on and off cancer growth. 
What does this mean?  It means that while we should still be concerned with AF’s, we need to reduce our animal protein consumption.  They found that casein, and very likely all animal proteins, may be the most relevant cancer-causing substance that we consume. 

To help minimize your exposure to aflatoxin, the FDA recommends purchasing only major brands of nuts and nut butters and to discard any shelled nuts that look discolored or moldy. Some medical research has indicated that a diet including vegetables such as carrots, parsnips, celery and parsley may reduce the carcinogenic effects of aflatoxin, and a study by the Johns Hopkins University also suggests that foods high in chlorophyll can be helpful.  Green vegetables - asparagus, bell peppers, broccoli, Brussels sprouts, green cabbage, celery, collard greens, green beans, green peas, kale, leeks, green olives, parsley, romaine lettuce, sea vegetables, spinach, swiss chard, and turnip greens are concentrated sources of chlorophyll.   Need another reason to toss the peanuts?  Peanuts are an inflammatory food, which means consumption increases inflammation in the body.  Inflammation is known to provide a cancer promoting environment in the body. To reduce your animal protein consumption consider almond, rice or hemp milk instead of cow’s milk, and switch to a mostly whole foods, plant-based diet.  Plant protein does not promote cancer growth, even at high levels of intake.  Once again we are reminded that we can minimize our risk of contracting deadly diseases just by eating the right food, and more and more studies show that a plant-based diet may simply be the best diet out there.  While I realize this may be a hard sell for your children, likely a few gradual changes will go unnoticed.

 Elyn Jacobs

  Elyn Jacobs is President of Elyn Jacobs Consulting, Inc. and a breast cancer survivor.  She helps women diagnosed with cancer to navigate the process of treatment and care, and she educates about how to prevent recurrence and new cancers.  She is passionate about helping others get past their cancer and into a cancer-free life.

Resources:  




CT Scans, Part of the Solution or Part of the Problem?

A computer tomography (CT) scan is a medical imaging technology that uses computer software and a series of X-ray views to produce detailed images of the inside of your body.  It provides much more information than regular X-rays. CT scans are particularly useful for patients who have suffered internal injuries from car accidents and trauma.  However, in most cases, doctors (and worse, physician assistants) are ordering these scans for minor bicycle and sporting accidents.   As you lie on a bed and move through a ring-shaped CT scan machine, your body is bombarded by a series of X-ray beams with dangerously high levels of radiation.  The radiation from a CT scan is equivalent to 500 or more chest X-rays, and a full body CT scan is equivalent to 900 X-rays.  Studies show that this radiation overload can increase your risk of cancer. An occasional CT scan is useful diagnostically, but you should avoid this procedure unless your life depends on it.

So if CT scans are so dangerous, why do doctors routinely order them?  I am sure that scans likely bring a sizable income to hospitals and medical facilities. According to Dr. Joseph Mercola, an Osteopathic Physician and prominent author and speaker, many CT scans are unnecessary but are still administered because:
·         Doctors don’t want to be sued for malpractice if they miss something.
·         Some patients ask their doctors for unnecessary scans because they are convinced of the benefits of advanced diagnostic tools. The tools they hear about from advertisements don’t even disclose the risks of radiation.
·         Some doctors want to screen worried and at-risk patients – like former smokers for lung cancer – “just to be safe.”
·         Doctors seek to earn back their investment on the technology.
·         Commercially advertised whole-body CT scans want to “find everything wrong with you” and target patients who can afford the procedure.

CT scans are also routinely used to monitor the success of cancer treatments and to aid with radiation therapy placement.  For those battling cancer, this is a major issue.  No one wants to die of cancer, but certainly the “cure” should not be part of the battle.  A new study published in the journal Cancer explains that these CT scans actually cause secondary cancers.  According to John Boone, coauthor of the study, CT expert  and professor in the University of California (UC) Davis Department of Radiology,   "This is the first study that I am aware of that shows that diagnostic CT scans cause cancer with statistical significance.  The organizations that recommend these protocols need to reevaluate this aggressive use of CT and maybe opt for MRI or ultrasound."  Sounds like good medicine to me.   

Learn more:
http://www.naturalnews.com/032120_CT_scans_cancer.html#ixzz1JyO3wA7U
Elyn Jacobs


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Elyn Jacobs is President of Elyn Jacobs Consulting, Inc. and a breast cancer survivor.  She helps women diagnosed with cancer to navigate the process of treatment and care, and she educates about how to prevent recurrence and new cancers.  She is passionate about helping others get past their cancer and into a cancer-free life.





The Road to Recovery

Surgery for removal of cancer can be tough on the body; pain and swelling are common, and often, as in the case of mastectomy, arms need to be retrained to perform even the most basic tasks.  I remember I was surprised that I could not pull a sweater over my head, wash my own hair or even get a glass out of the cabinet.  I was told I could and should exercise.  While I likely over-did things by walking the stairs in my building upon returning from the hospital, I knew that my recovery would be quicker if I got moving.  However, I knew I had to be careful, a lesson I learned after my stair climbing; had I not had the sense to go right to bed, I would have collapsed on the floor.   I also embraced massage as I was told that massage would relax me and help reduce the swelling.  The road to recovery is long, but help along the way is good medicine.

Physical therapy is very helpful post-surgery.  Physical therapists work with patients to alleviate physical issues that may arise from surgery or medical treatment for cancer. Through hands on interventions and therapeutic exercise, therapists help patients improve flexibility, strength, endurance and range of motion following treatment, thus improving their function and quality of life.  Physical therapists trained in lymphedema can be especially helpful if you suffer from or are at risk for this condition. I had a wonderful therapist, Amy Shapses, who helped me regain the use of my arms by instructing me in specific exercises to regain my strength and range of motion.  Her sessions hastened my recovery, mentally as well as physically.  Physical therapy is covered by insurance companies, so be sure to ask for a prescription.   

In the past, patients were often advised to rest; now, doctors are advising their patients to get moving.  Patients undergoing treatment, as well as those who have completed treatment benefit from exercise.  Exercise helps patients feel better, enhances quality of life and reduces side effects such as fatigue and anxiety.  Exercise and maintaining a healthy weight may reduce the chance for recurrence.  How much exercise is ideal?  That depends… start slow and work your way up to 30 and then 45 minutes a day, and increase your intensity as you go along.  Walking, jogging and cycling are great options, but don’t forget strength training.  Many cancer patients are not able to perform the same activities as they had pre-surgery, so until you regain your strength and range of motion, you may need some assistance.  If you use a trainer, be sure that he or she fully understands your particular limitations and needs, and again, find a lymphedema specialist if you suffer from this condition. Many organizations offer free exercise classes for cancer patients and survivors, so ask your doctor if there are services available in your area.  A few I know of who specialize in post-cancer care are the Lahey Clinic/ YMCA of Greater Boston and Strength for Life in New York.  Strength for life also offers free wellness retreats, which can help patients and survivors move forward in their journey. 

 Many patients are fearful of massage as they fear pain or discomfort or that it will in some way encourage lingering cancer cells to spread throughout the body.  On the contrary, massage helps reduce stress, post-surgery swelling and pain is recommended for patients.  Massage, acupuncture, nutritional therapy and other treatments associated with complementary medicine can support patients during their journey, and more and more allopathic (conventional) cancer facilities are incorporating integrative medicine into their programs.  


The cancer journey is not an easy one, so laugh, love, cry, and take advantage of all that is available to make your journey more successful.
Elyn Jacobs
elyn@elynjacobs.com
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Elyn Jacobs is President of Elyn Jacobs Consulting, Inc. and a breast cancer survivor.  She helps women diagnosed with cancer to navigate the process of treatment and care, and she educates about how to prevent recurrence and new cancers.  She is passionate about helping others get past their cancer and into a cancer-free life.

Resources:



The “A” team, My Story


I went to my Ob/Gyn yesterday for my routine semi-annual checkup.  I have known him for almost 30 years.   He commented that I am four years post treatment, and he can’t believe it. I told him that he was instrumental in my cancer journey and that his support made all the difference.  He made a comment to me that made me realize I need to tell my story.  He said “90% of my patients do not need me.  The other ten, well, they really need me.” Well, he was right, and that is exactly the reason I became a cancer coach….because not everyone has a knight-in-shining armor (or a whole team of them as things turn out).  Sure, he got me through a miscarriage, delivered my two boys; but when cancer struck, I knew I was blessed with an amazing doctor. So here is my story.
There are some things you never forget.  A week after a routine mammogram, the doctor’s office calls and says I need to come in for additional films.  My first thought is, great, they botched something up.  She assures me this is not the case, and could I come in tomorrow.  I do this, they take more films, and I am asked to wait.  A few minutes later, the nurse says the doctor would like to see me.  My heart sinks as I know this cannot be good news. Dr. Berson points to the films on the wall; my left breast resembles the galaxy.  He explains that the white dots are micro-calcifications, and that 30% of the time this is nothing, 30% of the time these are pre-cancerous, and 30% of the time, well it is cancer.  He looks at me quite squarely and says, “This is the 30% where I say you need to get a biopsy right away”.  With that he says I will require a stereo-tactic biopsy, and while he cannot do it, he can recommend an excellent radiologist who can do the procedure.  I leave his office and when I walk into my apartment minutes later (screening facility was in the building next to mine), the phone is ringing.  It is my Ob/Gyn, Marc Engelbert, calling to say that he had just heard and wanted to assure me I would be ok and that he agrees that the radiologist I am to see is top-notch.   I drop my films off at Susan Drossman’s office and after reading them, Susan calls me.  Yes, she can do this procedure and I am to call her office to schedule.  I call and the receptionist says,”Oh, didn’t the doctor tell you she would be away for two weeks?”  No.  True, it was the week before Christmas, but my heart sank.  I called Dr. Engelbert and asked for another recommendation, collected my films and schlepped to this other doctor.  With minutes of seeing my films, he says he cannot do this procedure, that I need a surgical (and more invasive) biopsy.  Scared, I call back Marc and he says if there is any way I can handle the wait, I should wait until Dr. Drossman returns.  Ok, I say, I can do this.  After the procedure, Dr. Drossman tells me that she will call me with the results in 24 hours.  Sure, I think, right.  23 hours later, when my son is home from nursery school with a play-date and a mom I barely know (who is now a dear friend), the phone rings. It is Susan saying she needs to talk to me.  I abruptly tell the mom that I have an important phone call and disappear into the bathroom.  Susan tells me that I have stage one breast cancer and that I need to see a surgeon right away.  She gives me two names and I hang up.  The phone rings before I can dial, and it is Marc, again calling with support and agreeing that either of the doctors suggested would be perfect, but that I should see them both.  I call the first, gone for the weekend, which happened to be one with a Monday holiday.  I call the second, gone too.  I call Susan back and she offers to make the appointments herself.  Ten minutes later she says she was able to reach one at home and he will see me on Monday morning, despite the holiday.  
On Monday, my husband and I see this doctor, a lovely man who examines me, looks at my films and explains my cancer.  He says that he could do a lumpectomy with radiation, am I aware that radiation causes recurrences and new cancers?  Before I can answer, he tells me that it is not of concern here as I have so much cancer in my breast  that he would end up removing so much breast tissue that I wouldn’t have anything left; he suggests a skin- sparing mastectomy with reconstruction.   Oddly, this brings relief.  We leave scared.  I am able to see the other surgeon, Dr. Alex Swistel, a week later.  The doctor walks in with a smile and the first thing he says is I am going to be fine…and we could tell he meant it!  He says that my only option is a mastectomy and asks if I wear evening gowns or bathing suits.  I say not too many gowns, but certainly bathing suits.  He then explains that instead of putting a scar on the side or down the middle of the breast (both obvious with skimpy clothing) he would go in from the crease under the breast.   After answering our questions, I am scheduled for surgery in two and a half weeks…I must wait until the biopsy wound heals.  I ask if it is okay if we go away, perhaps to a spa, is it okay for me to get a massage.  A resounding yes, great idea.  He tells us he will find the plastic surgeon he works with so I don’t have to come back for another appointment.
He leaves and my husband and I say “he’s our man, our ticket out of this mess”.  In walks the plastic surgeon.  Dr. Talmor is wonderful; she explains the different implants and says that because I am so thin, I will need silicone or saline implants (rather than my own fat or tissue).  We are told that for me, silicone would be likely be best, but it was my choice.  I take her advice, she explains the procedure and soon we are on our way.   We go home relieved, much of the fear abated. 
About a week later, I come to the conclusion that I would like to have both breasts removed.  I call Dr. Swistel and he agrees completely.  I also ask him if I can keep my nipples, something I heard was now possible.  He says that in fact, he and Dr. Talmor had just come from a symposium on this and he believes I am a perfect candidate.  He cautions me no promises…if he sees anything he does not like, the nipples come off.  I now feel cared for and in control of my cancer.  I am ready to do battle.
I was the lucky one, and I share my story so that women will realize that they deserve the “A” team.  My team was amazing.  From start to finish, my journey was expedited by helpful and talented doctors. I am eternally grateful to them for empowering me to make the best decisions, for being open minded to my concerns and ideas and for understanding that there is life after cancer. In addition, I had my husband, standing by me, taking notes and providing strength, and it made all the difference. Everyone says you need to be your own advocate, I say you need to bring an advocate. Because at the time in your life when you can barely function, and at a time when you most feel the need to be taken care of, you are the one who is expected to be proactive and assertive, and that is just too much to ask.   
Fighting cancer is a battle for your life; you owe it to yourself to get the best treatment possible for your cancer.  My story is not one of courage, it is one of inspiration.  I wish for all women to be in control of their cancer and to be part of their team.  Teams work together.  If you find it hard to communicate with your team, fire them and find a new one.  Information is empowering; slow down, you have time to make informed decisions.   You owe it to yourself to get it right the first time.

Elyn Jacobs
elyn@elynjacobs.com